trust is a delicate flower

How can you ever trust someone once they’ve betrayed you in the worst possible way?

I’m sure a lot of people have wondered that, for a myriad of extremely personal reasons. And sometimes we learn to trust again, slowly, gingerly, allowing that person back in, and sometimes we have to cut that person out of our lives entirely. Just depends on the situation, I suppose.

But what happens when that someone is yourself? What happens when you’re trying to learn how to trust your own body again? How does one go about doing that, knowing that, even if you want to, or feel like it’s for the best, you can’t just cut your losses and walk away? It’s just not an option.

I broke my foot a few weeks ago. I was running, and to be quite frank, I don’t know exactly how I did it, but according to the x rays that I saw with my own eyes, the bone behind my second toe on my right foot is broken clean through. In the early days, it hurt a LOT. Like a whole ton. Walking on it – at least properly – was not an option. The days passed, and slowly it started hurting a little less. I gingerly attempted to put some weight on it a few times, but generally ended up putting my cast (it’s just a walking boot) back on.

It’s been almost four weeks now – four weeks tomorrow since it broke, four weeks Wednesday since I went to the doctor and got the cast (the story of the days between that another time). The doc told me to come back in 2 to 4 weeks for a check up, so I’ll go in tomorrow after work and see what he says.

Today, though, I woke up and left my boot off for a few hours. At one point I even considered going for a run – mostly because I’m too lazy to drive to the gym but I still want to get some exercise in. But all too soon, I realized a few things:

a) I’m still limping, because I’m still scared of the pain that I might feel if I don’t,

b) Even if it doesn’t hurt when I force myself to walk properly, I’m still expecting it to, and

c) If it’s not entirely healed, I would probably do some serious damage by running on it too soon.

But let’s focus on a and b, shall we, and get to the point of this story.

I don’t trust my foot to hold my body weight without hurting me. Much the same way I don’t trust my body to not develop some cancer cells, regardless of how well I treat it. It’s not a constant worry, but I’m certainly relieved to know that I’ll be receiving CT scans every six months for the next two years to make sure that my body hasn’t betrayed me again.

If my body was a person, I really think I probably would’ve cut my losses and moved on. Only occasionally thought about it, less and less as the time went on. Eventually I would’ve realized that I was okay without this person who betrayed me so terribly. But I live in my body and I can’t trade it in for a new one, so I’ll never be ‘ok’ without this person who betrayed me in the worst way possible. My body tried to kill me. It literally tried to fucking kill me.

But because my options are limited, I’ve decided to keep trying to treat my body the way I wish it would treat me. I eat well. I exercise 3 – 5 times a week. (Even with the boot – I’ve just been forced to switch to upper body weight training instead of running, which is a shame, but it’s temporary.) I try to get enough sleep, and I try not to stress out too much. (That’s a daily battle, because my anxiety still rears it’s ugly head far more often than I’d like.)

I guess the point of this is – it’s hard to learn to trust yourself and your body again, but I hope that eventually I will. Maybe two years of clean scans is what I need to finally put this behind me. Unfortunately, I can’t fast forward two years, so until we hit June 2017, I guess I’ll just keep trying to be nice to my body and hope it reciprocates.

I need to learn how to walk properly again – both on my foot, and with the rest of my body.

post chemo paranoia

Things they don’t tell you about being done chemo: you will immediately become even more paranoid about every little ache and pain.

A few nights ago, I had a pain in my chest. It felt like I’d swallowed something sharp and it had gotten stuck chest-level. It wasn’t a constant pain, just like it kept shifting and poking me. Except I hadn’t eaten anything sharp. Pretty sure I ate an orange or something. Like an orange can poke you, right?

And my chest is where my cancer started. It’s the home of my original tumours. (I feel like there’s a cheesy eventplex name in there: chest wall, home of the OG tumours.) So my thought process, every time the pain stabbed, was something like this: “I have to go get more chemo. It didn’t work. The tumours are still growing. They’re so big now they’re causing me discomfort.” (Which never happened before, for the record. I actually had little to no idea that there were tumours there until I developed a cough in early December.)

Additionally, I’ve been coughing for over a week now. I know it’s just a cold because it’s been accompanied by the typical runny nose, and I can feel mucus (gross I know) moving whenever I get a good hack in. I can’t shake it, but I feel like that’s probably because my immune system is still shit. But again, sometimes my paranoia will override my logic and I’ll start thinking how the chemo didn’t work at all.

And sometimes I get a sharp pain in my neck region, right about where my secondary tumours were. This has been happening the whole time. It’s not even common enough for me to think about when it’s not happening, but when it does, I guess you can guess where my thought process goes.

I know that my fears of the chemo not working aren’t true, because I had a CT mid-March and it showed “significant shrinkage.” Obviously the chemo worked. There’s no way it would’ve started working and then all of a sudden just stopped and the tumours grew back. Right? That’s crazy talk.

But going for treatment kept my paranoia at bay. When I was getting drugs pumped into me every two weeks, I was able to shove my fears down with the knowledge that there would be more chemo to kill whatever it was that was causing me pain. Now that I’m done (and I haven’t even went two weeks since my last treatment yet!) I feel like I have nothing to combat my fears with. Except logic. And apparently it fails me when I’m in any sort of pain.

There is bright news, though. Two days ago, I woke up at regular person time (8 a.m. or so), stayed up til normal person time (11 p.m. or so) and didn’t take a nap! I mean, by yesterday I apparently ran out of all that energy because I fell asleep on the couch watching TV at 9 p.m., but the point is — it was the first day in forever that I hadn’t needed a nap. Small victories! I’ve started doing a little freelance print work – just a few stories a week, but it’s better than nothing. I’ve went for a few (short) runs with my dog. I’m trying to get my life back to normal.

There’s changes, of course. My life will never be the “same” as it was before cancer. I think it will end up being better, because I think I’m a much nicer, more patient, more generous person now. So, in spite of all my post-chemo paranoia, it’s not all bad. I just can’t wait to lose this chemo belly 😉

My PET scan is scheduled for May 25, with my follow up with my oncologist June 3rd. So in less than a month, I’ll know if my paranoia is just that.

cancer is making me fat

I kid, it’s not the cancer. It’s probably just my eating habits, which have gone entirely to shit in the last four months. I’d like to say it’s not my fault, because chemo changes your taste buds and all that jazz. But honestly, it’s kind of my fault.

Cancer and chemo are both known to cause fatigue. I’m the champion of middle-of-the-day naps now, which is completely out of character for someone who used to be a workaholic and has trouble standing still. Honestly, I twirl my fork in the space between bites at dinner. That’s how hyper I am. I just didn’t quit.

But now I’m bone weary after the smallest of outings. I legitimately need a two hour nap after a few hours out. And I mean need, like as in I’ll fall asleep on my face if I don’t. And of course, this makes sense. There’s a whole ton going on in my body — besides the cancer itself, the chemo is killing everythang. (EXCEPT THE FAT. WTF, chemo. Get yo’ shit together.) But the whole middle-of-the-day nap business is tough to adjust to, especially because for the first time in my life I’m gaining weight as a result of poor eating habits and general inactivity.

I haven’t gained a ton, but enough that I’m kind of uncomfortable most days — uncomfortable with how my clothes fit, uncomfortable with how I look, uncomfortable with how I feel. My jeans are a little tighter, I’m eating larger portions, and I’m eating a whole ton of junk food whereas before I was pretty much a health nut. (The irony of a health nut getting cancer is not lost on me, by the way. I also never smoked, drank maybe once a year…. you get the drift. Life’s not fair, but that’s just the way she goes.) I’m pretty much stubbornly refusing to get new clothes, though, because I am going to fit into my old ones again.

In the meantime, I know I need to get my eating back on track. At first, when chemo was so hard on me and I was nauseous more often than I wasn’t, I knew I needed to just eat something. There was like a 50 percent chance it would end up in the toilet, anyway, so I wasn’t too stressed about what it was. Then I kind of thought, well, chemo is only for six months at most and I’ll sort it out afterwards. Because I’ve never really gained weight from eating like shit before — probably due to the aforementioned constant activity. The thing I failed to take into account, is that nowadays I spend a good majority of my time not doing anything. I just kind of lack the energy required.

So I’m definitely gaining weight. On top of the ugly days from having about as much hair as the Chinese crested dog that raised my runt of the litter mini aussi before he came home with us, this is too much. I must do something about it. So this is accountability. I will stop treating my body like a fucking garbage can and I will force myself to get some freaking exercise. It helps with the body aches anyway — so that’s another little trick I have for you if you have to take GCSF shots. Your entire body will hurt, if you’re like me. And the last thing you’ll want to do is move it. But I promise, it will help.

Part of my problem could be due to the steroids, but I’m kind of hesitant to blame them because I did ask when I was first prescribed (dexamethasone if you’re interested) if they would cause steroid “puffiness” and the nurse promised me they don’t. So that’s probably not it.

I do have much more of a sweet tooth now, but I know I just need to re-train my taste buds back to normal ie. healthy foods. It’s natural, when you eat sugar you crave it. (Also please don’t tell me that cancer feeds on glucose aka sugar because there is glucose in almost everything and the last thing I need to stress about is my eating making more than just my stomach grow. I’m sure it’s not making my cancer grow, because otherwise my scans would’ve been just terrible.)

In the meantime, if someone invents a chemo that attacks fat cells, I’m the first one in line for that shit.